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DvdG's Page

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DvdG commented on Andrew's blog post Gene mutation in congenital glaucoma
"Hi Andrew, yes, in our case it was CIP1B1. This was confirmed after clinical tests on the blood of my daughter. We do not have any family history related to this gene. It works like this, at least this is how I understand it, you have 1:100 chance…"
Mar 13
DvdG commented on Andrew's blog post Gene mutation in congenital glaucoma
"Hi Andrew, In our case it was due to autosomal recessive transmission which was identified after DNA research done here in the Netherlands. I am not aware of the other but to us was explained that option 1 is in most cases the explanation for CG.…"
Mar 10
DvdG commented on Andrew's blog post Unilateral or bilateral glaucoma?
"Dear Andrew, I have a 3 year old daughter born with severe CG in both eyes. She lost vision in her right eye even though it was diagnosed within 24 hours after bith and she has been operated severeal times. The CG caused just too much damage.…"
Sep 24, 2013
DvdG commented on DvdG's blog post No Title
"Dear Christoph and Tre's Mommy. Thanks for your feedback and goodluck to all of you with dealing with CG!"
Jul 22, 2013
Tre's Mommy commented on DvdG's blog post No Title
"Diamox is a difficult medication to take. The side effects are just awful. And for the little one decrease in appetite is pretty common. Tre was on it for a few months but his opth was eager to get him off as soon as he could. Tre` currently had an…"
Jul 19, 2013
Christoph Groenewald commented on DvdG's blog post No Title
"Good luck with your battle! Our youngster is 8 months old and is getting his first glasses on Monday. His vision is -4.25 in his larger right eye and he has Level 3 Astigmatism in his left eye. He was born with 26 and 24 pressure. When he was born…"
Jul 17, 2013
DvdG posted a blog post

Goodday, I have not posted much on this site but have often looked at it. We are Dutch so apologies for my lack of correct english. Our story is (short version) the following. We have a daughter who…

Goodday,I have not posted much on this site but have often looked at it. We are Dutch so apologies for my lack of correct english. Our story is (short version) the following.We have a daughter who was born with severe (pressure around 60, cloudy cornea's) glaucoma. She had several operations and has now in both eyes a baerveldt implant. Unfortunately it did not help in her right eye so she is blind in this eye. Her other eye recovered remarkably well and is doing reasonably well. She has…See More
Jul 17, 2013
DvdG commented on Tre's Mommy's blog post Is it worth it?
"Hi, I am completely new here and apparently the first Dutch parent. I can only recommend surgery. My daughter was born with cognitental glaucoma. It was discovered within 24 hours after birth. She has been operated 6 or 7 times now, I lost count…"
Sep 7, 2011
Amy left a comment for DvdG
"Hi DvdG and welcome to the CGN. Please feel free to upload photos, introduce yourself on the forum, write a blog post, and comment on other member's walls. You are our very first member from the Netherlands :) Best…"
Sep 6, 2011
DvdG is now a member of Childhood Glaucoma Network
Sep 6, 2011

Profile Information

How have you been affected by childhood glaucoma?
No, but my daughter is.
What makes you smile?
Little things!

DvdG's Blog

Goodday, I have not posted much on this site but have often looked at it. We are Dutch so apologies for my lack of correct english. Our story is (short version) the following. We have a daughter who…

Posted on July 17, 2013 at 5:37am 3 Comments

Goodday,

I have not posted much on this site but have often looked at it. We are Dutch so apologies for my lack of correct english. Our story is (short version) the following.

We have a daughter who was born with severe (pressure around 60, cloudy cornea's) glaucoma. She had several operations and has now in both eyes a baerveldt implant. Unfortunately it did not help in her right eye so she is blind in this eye. Her other eye recovered remarkably well and is doing…

Continue

Comment Wall (1 comment)

At 9:40pm on September 6, 2011, Amy said…
Hi DvdG and welcome to the CGN. Please feel free to upload photos, introduce yourself on the forum, write a blog post, and comment on other member's walls. You are our very first member from the Netherlands :) Best wishes to you and your daughter!

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